johns hopkins prostate cancer second opinion

I have had a second opinion from Johns Hopkins that confirmed the initial pathology of gleason 3+4. Second opinions offer different things in different circumstances, Dr. Matasar says. In severe cases, a catheter may be required to relieve the symptoms. Over 80,000 specimen cases are seen at Johns Hopkins each year. I have a history where Foley catheters were unable to be placed going back to 2005 for unknown reasons. Below is the link with instructions and the authorization form for you to use with your doctor. 6: Prostate, left medial base 2020 Jul 21;19(1):112. doi: 10.1186/s12904-020-00619-9. I was never under the misconception that I'd never have to do something, but I was going to wait until I needed to do something. Ask your PCP to refer you to several different types of treating doctors before making a treatment decision. * Location: Right, anterior, apex, peripheral zone I officially joined the club with diagnosis on March 21: three small lesions with a GS 6 on one side and both a GS 6 and a GS (3+4) 7 on the other side. * PIRADS v2 Score: 3 Im immediately referred to Urologist. 6. PSA that brought me to this was 7.1. We will then prepare a written recommendation regarding your treatment plans or options. Best practices dictate that you obtain a second confirmatory pathology evaluation. The percentage of tissue with carcinoma is 70% Doctors can review their peers treatment suggestions and explain why they agree or disagree. I talked with Dr. Epstein who expressed Johns Hopkins' conservative views to not underestimate GS 6 and to consider surgery and/or radiation that have been used successfully for many years in saving lives. -------------------------------------------------------- MRI RE-READ #1 (well known radiologist, but free advice over phone, but no written report): There are also some cases of the test showing no depletion but being wrong. Tumor Quantifications: At this point, I am convinced I made the right treatment choiceOHFOR THOSE THAT DON'T KNOW, THE VA HAS MADE REPRODUCTIVE CANCERS A PRESUMPTIVE CONDITION FOR THOSE THAT SERVED IN MOST OF THE WAR ON TERROR LOCATIONS.Good luck fellas and my prayers are with all of you having to contend with this disease. 3 months has passed, and its time for a PSA and a plan to have an MRI. A. Prostate, right base, core biopsy: Treatment must be chosen based on stage and your If you choose to be treated at Johns Hopkins, you may be able to begin treatment immediately. 1. So, I also sent this MRI result to Johns Hopkins for a second opinion. Instead, I did my homework. Out of 12 cores, 9 are positive. Therefore, the value of these second opinions remains unknown. Either the patient or the primary physician can initiate the process of getting a second opinion. DIAGNOSIS: Even if someone is being seen at a different academic center, the trials and other treatment options that we offer here may be different. Obtaining a second opinion in Pathology can in a small percent of cases lead to a complete change in diagnosis in a wide range of conditions including non-cancerous growths, inflammatory disorders, infections, and cancer. Even at the age of 48, he thought I would be a good candidate for AS. Do second opinions matter in prostate cancer care? - ecancer * Membranous urethral length: 1.2 cm Pathology reports are the opinion and interpretation of the individual pathologist viewing the tissue samples. ADC: mean 879 / median 839 / st dev 223 Your doctor is not sure what is wrong with you. But in the spirit of disclosure for those of you with BPH a TURP can complicate a future Radical Prostatectomy (or possibly Cryo) and increase the risk of side effect risks. intricate disease and not all doctors have the same amount of experience A patient suffering from an enlargement of the prostate may have pain in his lower abdomen and genitals. notable articles of 2016 - Johns Hopkins Bloomberg School of He said that he saw what JHs was referring to but did not determine EPE for a variety of reasons. No extraprostatic extension. See this image and copyright information in PMC. Now, I would like to send Radiology for a similar review. Note respondents were able to choose more than one reason. Johns Hopkins second opinion identified a PI-RADS 4 Mayo Phoenix also reviewed MRI prior to targeted biopsy. And if so, what does being accepted in a AS program look like, do I need to be present at their location? The presence of any G4 has been my trigger to seek treatment. And 2 cores from left apex of 3+3=6 with 10% involvement. Cancer ABCs recommends: Johns Hopkins Hospital in Baltimore, Maryland, specifically Dr. Jonathan Epstein. - DCE = (+) He recommended waiting and watching at that time due to the lower PSA reading. PROSTATE ADDITIONAL FINDINGS: Benign prostatic lesion. I am unfortunately "officially" joining the club after getting my biopsy results today. For these reasons, it is a good idea for HMO members to get a second opinion and make sure they are informed about clinical trials or other promising new treatments. Pathology reports are subjective. It is OK to not understand all the terminology. )As for side effectsI occasionally have some urgency/hesitancy having to pee. We are vaccinating all eligible patients. * Perineural Invasion also detected Second Opinions (Adults) For stem cell transplant, please call 1-773-702-1994. SO. And in some cases, the information you gain during a second opinion consultation can even change your diagnosis. Then about a month later I started 28 fractions of Proton Radiation.It was painless. have no symptoms, and yet you have cancer? Intensity: min 148 / Max 459 I asked the urologist who did our Second Opinion at Johns Hopkins and although he thinks RP is the way to go (due to higher PSA of 10.18), he highly recommended Dr. Eggenger (Chicago). Confounding this, I have read that the different genomic tests can disagree with each other, and that Oncotype is usually a more aggressive finding. ---------------------------------------------------- I had no idea there were second opinions and I didn't have a clue about Genomic testing, or even genetic testing. How to Get a Second Opinion Our team at Johns Hopkins has a dedicated service to interpretation of brain tumors and render second opinions on a daily basis. Immediate means 6 weeks just to see his NP. You can find out by reviewing your plan or by reaching out to your insurance company. There is no bony or bulky nodal disease in the pelvis B. Prostate, right mid, core biopsy: Asking about other experience with conflicting Prostate Biopsy Opinions. The results were ambiguous. FAX 310-574-4002 Getting a second opinion from us is easy, convenient, and all done remotely. However, a new study by researchers at the Johns Hopkins University has found that second opinions did not change treatment choice or the persons perception of the quality of care they receive, at least among low-risk men. Time moves fast when dealing with cancer, but Doctors dont. 2. Cancer patients are encouraged to obtain second opinions before starting treatment. Advances in our understanding of breast cancer have opened up new treatment options or clinical trial opportunities, including targeted drug therapies and tissue-conserving procedures proven to greatly reduce pain and nausea. Younger men also sought the 'best' doctor. The results of Oncotype came back and it was a bad report. The site is secure. Bethesda, MD 20894, Web Policies The survey asked the men if they had opted for a second opinion from a urologist following their diagnosis of prostate cancer, and the reasons for the second opinion. The primary goal is to be cured with the least toxic, most effective approach. * Gleason Score: 3+3 (2 of 6 specimens) So off I went to see a community urologist who performed a needle biopsy in his office. This suggests that for some men, second opinions offer a way to pursue the treatment they already planned on, rather than to explore other treatment options, according to study authors Dr. Archana Radhakrishnan, of Johns Hopkins University in Baltimore, and her colleagues. Two 1cc tumors, gleason score 3+4 each, one in each lobe. Dont Miss: Bladder Control After Prostate Surgery. We surveyed men who were diagnosed with localized prostate cancer in the greater Philadelphia area from 2012 to 2014. Expert review of your case by a Cleveland Clinic specialist. I have been drinking out of an information fire hose. I was disappointed that only TRUS was being used, but I did find out that this was for screening only and IF you pass screeningthey use MRI guided biopsy for post-ablation follow up. I had two no-risk, non-invasive tests: a Free PSA with an adverse score of 9% and a PCA3 test with a disappointing 41. Symptoms include leaking and discomfort. 3/3 4K score 19% (high end of intermediate) Our regional community network integrates academic specialty cancer care at Allegheny General Hospital and West Penn Hospital and at more than 20 community cancer centers throughout the region. However, that information will still be included in details such as numbers of replies. The average age at the time of prostate cancer diagnosis is about 66. I frequently make a 2 hour car ride and I have to stop about 25% of the time and when I don't, the urgency is a bit more evident and with the urgency come some hesitancy, but not terrible. A new study by researchers at the Johns Hopkins University has found that . If you are considering undergoing a specialized treatment, such as cancer surgery, within your HMO, it is important to inquire about the number of such procedures performed each year by the HMO and the results. You receive a secure, private online consultation without leaving home. You may choose to consider a second opinion if you: A new study by researchers at the Johns Hopkins University has found that second opinions did not change treatment choice among men diagnosed with low-risk prostate cancer. Getting a second opinion on a diagnosis can reverse a diagnosis or alter the treatment plan. However, something is driving my PSA. Extracapsular extension: The prostatic capsule is preserved. * Your assessment is very important for improving the workof artificial intelligence, which forms the content of this project Benign Processes: Hope to hear from a bunch of people. Similarly, among those who received definitive treatment, second opinions were not associated with receiving surgery. TRANSPERINEAL MRI GUIDED BIOPSY RESULTS A total of 2386 men responded to the survey (adjusted response rate, 51.1%). -------------------------------------------------------- After sending off all of our records, CD of MRI and path reports, my husband is booked for screening in December. They hesitated calling it a TARGET LESION, but scored it PIRADS 4. There were several areas of interest - but nothing in seminal vesicles, lymph, or bones. When I was diagnosed I really thought that I will live only 2 years. They won't be offended, and they may even be able to recommend a specialist for you to see. My questions are: Seminal vesicles: The seminal vesicles are normal and symmetrical bilaterally. He said that it will improve in the future due to future improvements in the treatments. 1. Thank you! undefined will no longer be visible to you including posts, replies, and photos. 7 in 10 PATIENTS WHO GET A SECOND OPINION AT CTCA CHOOSE TO TREAT WITH US Call now to find out why: 800.888.8888 Rosie P. Colorectal Cancer Thanks, Benign prostatic tissue She put me in the hospital. They told me to expect a spike in my PSA sometime in the future, and they told me that studies are showing that a slow, steady decline in PSA is often indicative of superior results (whatever that means. AHN patients have unprecedented access to the Johns Hopkins Center for Fetal Therapy. To learn your stage of prostate cancer, take the staging quiz on keytopc.com. Mohamad Allaf, M.D., answers questions about prostate cancer diagnosis and treatment options and discusses robotic prostatectomy at Johns Hopkins. If youve received a new diagnosis or arent seeing results from your current treatment plan, a second opinion can help you move forward with confidence. When people recommend going to a Center of Excellence, believe them. Hi All, Read Also: What Are The Signs Of Prostate Infection. I'm currently in the process of getting an appointment set up with a Dr. Wang at UCLA. Hello, I apologize upfront for the length of this post, but I was recently diagnosed with prostate cancer (T2C) and figure more information is better than not enough. There are also many reasons why you may want to seek another opinion during the course of your cancer care. Hi JM "Numerous publications show the clinical and economic benefits of obtaining a second opinion for Pathology specimens. Learn more: Vaccines, Boosters & Additional Doses | Testing | Patient Care | Visitor Guidelines | Coronavirus. He adds that second opinions also can provide insight into topics like clinical genetics and family risk or issues related to complementary or integrative medicine approaches to manage symptoms. Request an Appointment 410-955-6100 In addition to cancer, our urologic team provides second opinions regarding urinary stone disease, urinary tract reconstruction, incontinence, male infertility and sexual health, and many other urologic conditions or procedures. And when I attempt to ask questions about intradcutal, I get responses about how little is known about it because it's so rare or that it is controversial or that they're not familiar with the study I'm referencing.